ALS is one of those unspoken of diseases. It got a lot of attention last year through the first annual Ice Bucket challenge. It was to raise funds and create awareness, it worked.

ALS is a life threatening, terminal illnesses that you feel like you can't do anything about, because frankly you can't. You can slow it down with medication but you can't stop it. It's like a train whose brakes have finally given way. 

It's sad, it's scary and it affects more people than you know.

ALS (amyotrophic lateral sclerosis) is a neurodegenerative disease where the nerve cells that control your muscles die. The ‘living wires’ which connect your brain to your muscles degenerate, leading to loss of mobility, loss of speech and eventually the loss of ability to breathe. It affects 2500-3000 people while 1000 people will be diagnosed each year.

My step dad, Jim, was one of the 1000's diagnosed with ALS earlier this year. He started developing symptoms about two years ago and through many tests, the terrifying diagnoses was made in spring 2016. The disease is progressive rapidly and viciously.

Things have not been easy. Living with ALS is not easy. Watching family live with ALS is not easy. 

Jim is immobile now and requires oxygen to sleep a little bit better. He spent a few days in hospital in May.

My mother is now his full time caretaker - 24/7. 

There is no "cure all pill" for ALS. It won't "get better" but we have to make the best we can of the time we have left. Right now I am trying to be the best support system for my mom and Jim. Whatever they need, if I can do it, I will do it. 

You can help those living with ALS by donating, joining a fundraising event or simply sharing this post. 

If you'd like to help with #JimsALSFight you can donate via our special GoFundMe page below. Over 50% of our goal is being donated to ALS Canada in Jims name. I am not asking for me or my family, just them - because I care and I want to do something to help. It's hard being a bystander and feeling helpless. 

Visit the ALS Canada website for even more info and ways you can help freeze this disease out!! 


*Not sponsored. Posted to help bring awareness to ALS*



Post a Comment

Did you enjoy this post? Please feel free to leave a comment below! Comments are moderated for quality purposes. The author has the right to remove any questionable comments without notice.